DISCOVER THE ALLEGRETTO ASSOCIATION
ALLEGRETTO is the charity we have proudly supported from the very beginning. Founded in 2018 by families affected by Rett syndrome, the association provides practical support to children living with the condition while also funding medical research.
THEIR MISSION ?
FIGHTING RETT SYNDROME
UNDERSTANDING RETT SYNDROME
Rett syndrome is a rare neurological disorder that mainly affects girls, occurring in approximately 1 in every 10,000 births. It is the leading cause of severe multiple disabilities of genetic origin in girls.
Is there a treatment?
At present, there is no cure for Rett syndrome. However, early and intensive therapy can help slow down and, in some cases, stabilize the loss of abilities.
Research is making progress: the gene responsible for the disorder has been identified, and ongoing studies are opening up new possibilities. Two gene therapy clinical trials are currently being prepared.
THE ACTIONS CARRIED OUT BY THE ALLEGRETTO ASSOCIATION
To improve the quality of life of children affected by Rett syndrome and help accelerate scientific progress,
ALLEGRETTO carries out a wide range of concrete initiatives, including:
• Funding training programs for specialized healthcare practitioners
• Raising awareness of Rett syndrome among the general public and healthcare professionals
• Sharing proven educational and therapeutic approaches with families and care facilities, while organizing specialized workshops led by French and international experts
Through these initiatives, ALLEGRETTO works to ensure that every child living with Rett syndrome receives appropriate support, while also helping advance research toward future treatments.
MEET MATHILDE
Volunteer with the association and mother of Anastasia, who lives with Rett syndrome, Mathilde shares her daily experience : from the first signs of the condition to the hope inspired by advances in research.